change of plans

Well the trip to Disneyland is out. With the questions about my health right now Scott was not too excited about me taking Drew for 6 days with no back up. Plus the money we save on that mini trip can be applied to the BIG trip in December. In some ways I am actually relieved that we are not going. Drew was all right with it after I promised that SOMETIME in the future we would take a big trip with Phil and Betsy. He just doesn't know when.

On the health front, we see the neurologist tomorrow morning to hopefully get some answers about all of this. The eyesight is improving. It will never be what it was but hopefully it will continue to improve.

I get so frustrated. There are so many things I want to do with Drew but I can't. I feel like he is getting short changed. I feel all right in the morning but by afternoon it is all I can do to move and stay awake. Tried to get in the pool with the guys on Saturday. The water was too cold and I spent 5 hours trying to get warm and waiting for my muscles to "unseize"

I refuse to have a "pity party" This was the hand I was dealt and I will deal with it. I know I am getting ahead of my self because we don't have a diagnosis yet. I am hopeful that what ever this is there will be a treatment and I can get my life back and have the engery to do the things with Drew and go back to being the wife and mom that I used to be and that Scott, Drew and phil deserve.